| چکیده انگلیسی مقاله |
Background and Aims: Each year, approximately 300,000 children worldwide are diagnosed with cancer. According to studies, the disorder and turmoil caused by childhood cancer and its treatment is diagnosed beyond the child and the parents are also affected. Studies have shown that most parents of children with cancer have experienced the burden of care. The burden of care reduces the quality of life of parents and is effective in the quality of life and care of children. Parents of children with cancer have a high level of burden, and as a result, they have responsibilities for child care. One of the most appropriate ways to deal with the disease is resilience. Caregivers with low resilience carry a high burden of care, even if the caregiver's demand for care is low. Resilience helps people find different coping strategies and skills. Increasing family resilience can reduce the burden of caring by improving physical and mental functioning. Parental care measures have a significant impact on the condition of children with cancer. Promoting opportunities to care for children with cancer, participating in parent support face-to-face or virtual groups, as well as discussions between nurses and parents can enhance parental care for a child with cancer by strengthening the competence and empowerment of parents. Internet interventions are emerging as a means of providing affordable and acces sible health care to promote self-management and engagement. Internet-based intervention is an e-learning program that is managed electronically. This program tries to make positive changes and improve knowledge and understanding of health-related conditions for parents of children with cancer by using virtual network-based education, so the main purpose of this study is to determine the effectiveness of virtual network-based education on resilience and the care burden for parents of children with cancer. Material & Methods: This study is an effect evaluation study (Pre-test and post-test) It was a single group which was done in 2021. The research environment was Hazrat Ali Asghar (AS) subspecialty hospital and pediatric medical center. In this study, 50 parents of children who referred to these centers for chemotherapy or other care were selected by continuous sampling. Sampling time interval From September 2020 to February 2021 it took. Data collection tools were Personal profile form that has two parts and includes parent demographic information including: gender, age, economic status, employment status, number of children and level of education and child demographic information including: age, sex, duration of illness and type of illness, resilience scale (2003Connor, and Davidson Which is a 25-point scale of 5-point Likert type with a minimum score of 0 and a maximum score of 100, which indicates a high resilience of 60 and above, and the Care Load Scale (1989Novak and Guest,) is a The 24-point scale with 5-point Likert has 5 subscales and the lowest score is 0 and the highest score is 96, and the number 36 and above means a high care load. First, a pre-test was taken. Resilience training was held for 4 weeks through a virtual social network with using collected resources In the field of methods of increasing resilience, which was turned into an educational booklet and approved by the selected judges of the faculty and a post-test was performed one month after the intervention. Data analysis was performed using descriptive and inferential statistics (paired t-test) in SPSS26 software. Results: Demographic variables were examined and statistical analysis was performed. The results showed that in parents, the highest frequency of gender was mothers (84%), age, 30 to 35 years (40%) and all units were married. The highest frequency of economic status was moderate (66%), the majority of parents (62%) were housewives, had two children (54%) and 44% had diploma participants. In children, the highest frequency of age, related to the age of 3 to 6 years (21%), the highest frequency of sex, belongs to girls 27 out of 50 children (54%), the most Time Getting infected Child It was related to the two options "less than 6 months" (38%) and "6 months to 1 year" (38%) and in terms of the type of disease, the highest percentage was related to "leukemia" (42%). The results based on paired t-test showed that: Mean resilience before intervention 50/32±21/84 And after the intervention 78/24±9/16 It was obtained and showed that the mean score obtained after the intervention was significantly higher than before the intervention which means more resilience (p < 0.001) And average Total care burden Before intervention 57/18±18/17 And after the intervention 24/02±7/45 was obtained and showed that the mean score obtained after the intervention was significantly lower than before the intervention, which means less care burden in this variable (p < 0.001). Conclusion: In order to achieve the results based on the objectives of the research, for each purpose, the scores were examined in the stages before and one month after the intervention and then the changes between before and after the intervention were compared. According to the results of the present study and the findings of other similar studies, it can be acknowledged that resilience as a variable rooted in individual and social psychology, for parents and other members of the community, it is strongly influenced and promoted by psychological interventions. According to the findings of this study, the virtual network-based educational program increases the resilience of parents of children with cancer. And because parents are more likely to be at risk of mental health than other family members because of their close relationship with the child, the use of high-performance social networking programs to increase resilience the care of parents, especially parents of children with cancer, should be considered by nursing managers |
| نویسندگان مقاله |
هاجر بهزادی | Hajar Behzadi
Department of Pediatric Nursing, Iran University of Medical Sciences, Tehran, Iran.
گروه پرستاری کودکان، دانشکده پرستاری و مامایی ایران، دانشگاه علوم پزشکی ایران، تهران، ایران.
لیلی بریم نژاد | Leili Borimnejad
Nursing Care Research Center, Iran University of Medical Sciences, Tehran, Iran.
مرکز تحقیقات مراقبت های پرستاری، دانشگاه علوم پزشکی ایران، تهران، ایران.
مرجان مردانی | Marjan Mardani Hamoleh
Nursing Care Research Center, Iran University of Medical Sciences, Tehran, Iran.
مرکز تحقیقات مراقبت های پرستاری، دانشگاه علوم پزشکی ایران، تهران، ایران.
شیما حقانی | Shima Haghani
Biostatistics, Nursing Care Research Center, Iran University of Medical Sciences, Tehran, Iran.
آمار زیستی، مرکز تحقیقات مراقبت های پرستاری، دانشگاه علوم پزشکی و خدمات بهداشتی درمانی ایران، تهران، ایران.
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