| چکیده انگلیسی مقاله |
Background: Multiple sclerosis (MS) is a chronic disease related to immune system deficiencies, where symptom management and care are the primary treatments. MS often affects individuals at a young age, a critical period for working, marriage, and fertility. Identifying effective factors for controlling this disease, especially during crises, is crucial. This study aims to explore the personal, family, and social experiences of MS patients during the COVID-19 pandemic living in Ardabil City, Iran.
Materials and Methods: This qualitative study involved 24 semi-structured interviews with MS patients and healthcare professionals. The samples were collected by purposive sampling, and data collection continued until saturation. The trustworthiness and strength of the data were ensured and analyzed using the conventional content analysis approach.
Results: Seven healthcare professionals and 17 patients with MS participated in this study. A total of 835 primary codes, 14 subthemes, and 4 themes were identified. The main themes were weakening resilience during the epidemic, amplification of disease burden, disruption of social care service networks, and positive experiences during the COVID-19 pandemic. The main theme in theme extraction was inadequate social care.
Conclusion: Understanding the experiences of MS patients during the COVID-19 pandemic provides valuable insights for families, caregivers, social planners, and public health policymakers. This knowledge is essential for planning effective individual, family, and social interventions to care for MS patients. |
| کلیدواژههای انگلیسی مقاله |
COVID-19 pandemic, Multiple sclerosis, Individual experiences, Family experiences, Social experiences, Content analysis |
| نویسندگان مقاله |
| Soraya Hamidi Razey
Student Research Committee, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
| Fardin Alipour
Department of Social Work, Social Welfare Management Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
| Mostafa Mardani
Department of Social Work, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
| Leila Ostadhashemi
Department of Social Work, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
| Mohammad Sabzi Khoshnami
Department of Social Work, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
| Foroogh Elyasi
Tavanmandsazi MS, Charity Institute, Tehran, Iran.
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